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My child has a vision problem

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Julie Loe

Question:

We always knew he had a vision problem, but no one could tell us what the problem was. His teacher just learned about cortical visual impairment and he has all the characteristics.

What do we do from here? How do we get him diagnosed? Where can we go to get him the help he needs to learn to communicate? Because of the visual impairment, he is not learning to sign.

Please help direct us in the direction we should go to find help for him.

Answer:

First of all you do need the correct diagnosis. He need to be examined by a pediatric ophthalmologist. PEDIATRIC is the key word here. You need a recommendation from your pediatrician or call the local childrens hospital in you state.

You need to get assistance through the deaf/mute program at your school. With the diagnosis of Cortical Visual Impairment, he qualifies for the services for the deaf- blind. He will need specialist in communication for the deaf - blind.

I think he will be taught Braille. Contact these organizations for more information and suggestions for what to do next. But the diagnosis is first.

American Association for the Deaf Blind
301-588-6545
National Family Association for Deaf-blind
800-255-0411 ext 275
http://www.helenkeller.org
E-mail: [email protected]

For the diagnosis of cytomegalovisus congenital, you might want to contact

Clinical Care Center CMV Registy
713-770-4387
[email protected]

Do you have contact with other parents of similar children? If you want a resource and tell me the state you live in I will help you get in contact.

Best wishes,
Julie Loe

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Last modified: January 26, 2013